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"One in 10 Americans are living with a rare disease, but less than 10% of all rare diseases have an approved treatment option," Sen.
Bob Casey says in a press release.
"It is important we do all we can to improve access to innovative health care optionsespecially for children."
That's why the Pennsylvania Democrat and Oklahoma Sen.
Markwayne Mullin have introduced the Creating Hope Reauthorization Act, which would extend the FDA's Rare Pediatric Disease Priority Review Voucher program for another 15 years.
Under the program, the FDA issues " vouchers" to pharmaceutical companies to speed up the review and approval of new treatments for children with rare diseases.
Since its creation in 2012, the PRV has awarded 53 vouchers for 39 rare diseases that have led to treatments that have helped more than 200,000 patients, the press release notes.
The PRV program "has been a lifeline for hundreds of thousands of children living with rare medical conditions," Mullin says in the release.
"Over the past decade, the Rare Pediatric Disease (RPD) Priority Review Voucher (PRV) program has successfully helped incentivize and expedite the development of new treatments and cures for young children with rare conditions including pediatric cancer and rare genetic disorders," he adds.
The program "helps speed the development of new treatments
Selected Grant News Headlines
A customized collection of grant news from foundations and the federal government from around the Web.
A Vermont man is facing up to life in prison after police say he left his 7-year-old granddaughter in the care of a woman he met online. Police say 46-year-old Michael Lundin of Jacksonville,...more
Newborns in Europe could soon be getting a heads-up on rare diseases before they're old enough to know for sure. Dr. Alessandra Ferlini, an associate professor in medical genetics at the...more
The Lilabean Foundation for Pediatric Brain Cancer Research was started by Nicole Giroux in honor of her daughter, Lila, who was diagnosed with inoperable brain cancer at just 15 months old and...more
Amazon is putting its money where its mouth is, donating $1 million to three children's hospitals in the US and Canada, DC News Now reports. The money will go to Children's National Hospital in...more
A nurse at the forefront of the fight against childhood obesity has come up with a device that would encourage parents to spend more time on the baby's tummy. Ainat Koren, a PhD student at the...more
In the face of a $700 million budget shortfall, DC Mayor Muriel Bowser proposed cutting the $87 million Early Childhood Educator Pay Equity Fund, the nation's first publicly funded program intended...more
A San Diego children's hospital has developed software that it says will make it easier for surgeons to view 3D CT scans. The Arc Viewer, developed by Rady Children's Hospital's 3D Innovations...more
"This is the second of several upcoming patents," Nuwellis CEONestor Jaramillo says of a "significant stride" the company has taken with its Vivian continuous renal replacement therapy device for...more
It's not just kids who are struggling to make ends meet when it comes to child care. "It's a workforce issue full stop," says Sarah Rittling, executive director of the First Five Years...more
About 7 million children and teens in the US suffer from post-traumatic stress disorder, and a new digital tool could help them get the help they need. The Los Angeles Times reports on a new...more
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Bloodbath on Biddle: Fear and Philanthropy
Dacy Rehding, an orphan who roamed the streets of Wyandotte looking for a playmate until it drove her mad, serves as the inspiration for Bloodbath on Biddle – this year’s Wyandotte Jaycees haunted house.
